CRPS poem

The #WongWay to live

Is the right way for Susan Cook! Invictus Games medalist, GB Women's Bronze medalist in Para-Ice Hockey and now baker!



Complex Regional Pain Syndrome - CRPS


C is the colour change that can mottle our bodies,

R is for the pain that rapes our bodies of life,

P is the protection from the world that we have to find and

S is the screaming and crying we do when we are alone.


C is for the care that we dream of receiving,

U is for the understanding we wish we had,

R is for the radiance we envy in others,

E is for the endurance until we get a cure.


L is the beginning of a story we’ll never tell,

I is for the individual events we may never do,

F is for the frantic way we do what we can when our pain is low and

E is for everything we hope to do in the future.


CRPS will have a CURE so that we may all have a pain free and happy LIFE.